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DSM-IV Definition of Depersonalization, and Merck Manual Definition | Progression of My DP Onset |
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"When I consider the short duration of my life, swallowed up in the eternity before and after, the little space which I fill, and even can see -- engulfed in an infinite immensity of spaces of which I am ignorant and which know me not, I am frightened, and am astonished at being here rather than there, for there is no reason why here rather than there, why now rather than then. The eternal silence of these infinite spaces frightens me..."
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So let's tell as much as we can. The more the better." - Carly Simon - |
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for time is the longest distance between two places." - Tennessee Williams - |
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Mental Illness Is A Medical Disorder (Regardless Of How It Was Precipitated) |
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I have been asked many times (and my response does anger some people) if I would prefer having any other illness in exchange for being mentally ill. I respond with an emphatic "Yes -- any other illness -- even cancer, if I were allowed to live only one year with a healthy brain, a healthy mind."
This is only my personal opinion. I am not saying that physical suffering of any kind is any less horrifying or painful -- no one deserves to suffer, ever. Unfortunately this is the nature of our lives and ultimately we die -- alone. However, there is a crucial difference in suffering from a mental versus a physical disability, and God help someone who might suffer both. One may live with the horror of paraplegia and may very well contemplate death as an escape from such misery. But it is my contention that if one has a healthy mind, one might be able to see alternatives, positive ways of coping. Someone with a physical illness has the potential to "pull him/herself up by the bootstraps" as those "bootstraps" are the blessing of a healthy mind, a healthy Self.
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No one deserves this. |
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four years before his death. |
I have heard from medical professionals, nurses in particular, that physically ill patients say they would trade their disease for any other. Perhaps the key point here is that mental illness is a crippling and frightening neurological disease, a biological illness, a physical illness as well, and mental illness can be as disabling, frightening, or as lethal as incurable cancer if one is unable to cope.
It is ironic that my mother, once a successful medical doctor and psychiatrist, lost her Self completely and forever to Alzheimer's -- another cruel neurological illness. She passed away unexpectedly on September 12, 2001 after living under constant care for nearly ten years in a nursing home. I doubt we could have resolved any of our conflicts and I regret I will never fully understand what caused her, her entire life, to be so full of rage at the world. I am still in the process of dealing with her passing and will do so the rest of my life. My father and I did have time, several months in his eighties, to talk as openly as possible about the past -- to clear up some confusion and understand where things went wrong. I began to comprehend the magnitude of his own battle with mental illness, Obsessive Compulsive Disorder, which made his career as a surgeon a struggle it needn't have been. Had he received the treatment available today for OCD and anxiety, he would have been a far less tortured human being, ashamed of his "failures and shortcomings." I am forever grateful for having that brief time to understand him better and to say goodbye.
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| This site will continue to evolve as I come to terms with my mental illness. I am fully aware I must let go of the past, and look forward to continued recovery and improved quality of life. But this process is different for each and every one of us. We are all unique. |
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Who stops being a bird, yet beats his wings Against the immense immeasurable emptiness of things." - Theodore Roethke - |
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The Merck Manual of Diagnosis and Therapy Definition of Depersonalization Section 15. Psychiatric Disorders Chapter 197. Dissociative Disorders, updated 2005 |
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Progressive DP Onset Since Early Childhood |
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Dad keeps his distance. |
I don't find it unusual that my first DP experiences seem to have occurred when I was traveling. Time changes and unfamiliar places still exacerbate my DP to this day. These are stressors or traumas to the brain, especially the sleep-deprivation that often accompanies travel. It is common for the population-at-large to experience fleeting, not chronic episodes of DP when sleep-deprived.
My parents both loved to go abroad and had traveled extensively during the two years before I was born. My father considered travel relaxing and educational. My mother on the other hand made any trip a military exercise; there were too many things to see and one was "a lazy fool" not to take in every sight possible. It didn't matter who traveled with my mother; they were guaranteed to return in an agitated state. |
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I took many trips with both of my parents as a very young girl, most notably a trip to Mexico when I was about four years old.
I wasn't able to sleep well or eat on airplanes and often suffered terrible ear pain. I was even afraid to use the toilet as I was certain I'd get sucked out of the plane when I flushed. My mother's response to all of this was that I was "making a fuss over nothing." "You don't want to eat, don't eat then. Don't complain about it if you're hungry later." When we arrived in Mexico I felt I was going to pass out. I saw stars, felt nauseated, faint, mentally confused and disoriented. I specifically recall my father's concern and only his efforts to comfort me. He found a restaurant that served pancakes and orange juice at all hours -- comfort food to this day. I have fleeting memories of feeling odd the entire trip. At some point I literally hallucinated my cat, Hatse, under a chair in our hotel room. I reached out for her and she disappeared. I was overwhelmed with great sadness, a painful desire to go home, and a pervasive sense of fear. There was more arguing than laugher on that trip, as usual. |
with my cat, Miss Hatse Moody. |
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World class sparring partners. |
Once my father became persona non grata at home, I became my mother's travel companion, her baggage handler, her "husband," and her verbal punching bag if things didn't go exactly as planned. Again travel was a lesson in discipline, in stoicism -- no time to relax. "You will see the Mona Lisa if it kills you!" Without my father as a buffer, the most potentially wonderful adventures became biannual jaunts to foreign boot-camps. I feel I shouldn't complain as I have been to virtually every continent on earth. And it is true I have had every advantage in my life -- every enriching experience -- cultural, educational, and social. Yet all of these things are meaningless as I never felt truly loved or accepted by my parents and was basically despised by my mother for being so "unlike her," so much "my father's daughter" -- a "lazy ne'er-do-well." |
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I believe I can pinpoint my first DP thoughts and feelings to a trip my mother and I took on our own to Tobago when I was around five years old. I was always left to my own devices to explore hotels and their grounds and would frequent gift shops, information desks, crash parties and dance to the amusement of the guests or find the rare youngster to play with. I was frequently left alone to entertain myself as soon as I was capable of doing so. One evening I purchased a book on Dracula in the Hotel gift shop that had a disturbing illustration on the cover that initially fascinated me then gradually began to terrify me. I sat staring at that hideous image and became increasingly anxious and frightened. I recall leaving the hotel room in a panic and flying down a plush spiral staircase into the lobby. My mother was chatting there with another woman. When I interrupted her to tell her I was petrified, she shooed me away; "Don't be ridiculous, it's just a picture, you're not scared of that are you? Can't you see I'm having a visit here with Mrs. X?" |
Animals always made things better. |
| My mother frequently denied the veracity or very existence of my emotions. Her usual reaction to any emotion was I "wasn't really feeling that way" I was just "acting" or "looking for sympathy or coddling." Early on I began to lose touch with my true feelings and to this day have difficulty sometimes connecting emotion to experience; I am sometimes doubtful of how to respond emotionally in various situations. My reactions can be greatly exaggerated. My sadness overwhelming, my rage extreme, my anxiety crippling. Even joy is self-conscious, less spontaneous, sometimes forced. |
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Expo 1967. Good with company as buffers. |
A few days after the Dracula incident, my mother came down with some mysterious tropical malaise. She "felt miserable, had a fever, and there were 'all sorts of red dots in her very sore throat'." She lay on her bed and I on mine. I grew increasingly certain that she would die. When I mentioned this serious concern she remarked, "If you are afraid I'm going to die, you must want me to die. Just leave me alone!"
Here Freud was again unceremoniously exhumed and thrown in my face. My mother's theories changed regularly and randomly from psychoanalytic to neurobiological. Afraid to disturb her I turned towards the blank wall by my bed and began to focus intensely on my body. I began to think, "Who am I? What am I? What is this lump of flesh laying here? Why am I here? What is it to be alive, what is it to be dead?" These extreme existential thoughts took on a life of their own and manifested themselves as a physical sensation -- a perceptual shift.
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I refused to travel with her ever again -- and never did. |
I felt I was merely a thought. My body was merely a vessel containing the illusion of life, of the world, of the universe, all existence.
At the time none of these thoughts or feelings were frightening to me and I could "shake myself" out of the trance. But here was the beginning of the vicious cycle of over-introspection, over self-consciousness, and the physical manifestation of pure existential thought, that would return to haunt me on and off throughout my youth and ultimately envelop me as an adult. |
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© Sandy Gale, 2000-2008
The Pear Blossom Project |
| April 17, 2008 |